Sharing my experiences raising a son with special needs
Do you ever feel like you're just recovering all the time? Like every moment you're not working or running kids to activities that it's less about relaxation and more about recovering from your every day life? I feel that often. Lately I have been reading lots of self-help books (which is a lifelong habit of …
Continue reading Time for a Change
I'm a planner by nature, I like to know what's going to happen in the long-term so I can be ready for when it comes. I usually figure out the future rhythm of our family in timeframes of six months or more in advance - kids activities, summer vacations, Mom & Dad getaways, etc. In …
I promise I'm not yelling when I'm typing CHARGE in caps! This syndrome is defined as a constellation of features or birth defects, and each letter in the acronym, CHARGE, stands for one of those features. If you are interested in more details of this complex syndrome, please visit the CHARGE Syndrome Foundation website, they …
Continue reading CHARGE Syndrome and what it means for our son
I've been thinking about starting a blog for a while because it just seemed like something fun that I would enjoy, but I didn't think I knew enough about anything to actually write! Over the last few weeks, random things kept pointing me in this direction, and after two people independently said 'you should write …
My son has ADHD. Why does that seem so odd to me? He's 16 years old and a grade 11 student, and has had more surgeries, procedures, and specialist appointments than would ever seem reasonable. Why does this 'new' diagnosis bother me? He has had CHARGE syndrome his whole life, and it is the only …
I've been thinking about starting a blog for a while because it just seemed like something fun that I would enjoy, but I didn't think I knew enough about anything to actually write! Over the last few weeks, random things kept pointing me in this direction, and after two people independently said 'you should write …
